Thursday, November 15, 2007

More Drama

I had a dramatic family meeting last night.  My patient, Yvonne, a young 40ish woman with metastatic breast cancer has been in our facility for pain management.  She's getting ready to transition either back home or to a nursing home for the last weeks/months of her life. 

She's had a tough time, her 3 teenage kids don't seem to be accepting of her decline. Since she's been gone from home, 2 of them have dropped out of school.  She can't be around to encourage them to go, to take care of them, to help them keep their paths straight.

I met with her kids separately, to make sure they understood how serious their mom's cancer was. Also, to give them a chance to ask questions.  We then went back for a larger meeting. All of the patients brother's and sisters and cousins came. About 25 people all circled around the room.  I knelt on the floor next to my patient.  I spoke to her, but for the benefit of everyone.  I explained where we were at in her disease, and what the options were for next.  All of the family voiced the desire to take care of her at home, ready to pitch in. As I wrapped up I said something like, "Now is the time as a family to be saying the things that need to be said".

One of her brothers spoke up, "I just want to say, sis, I love you... and doc, thanks for everything". Another sister started to tear up, "I have something to say too,"  I was really amazed, I hadn't meant THIS moment was the time to say everything, but hey, the mood was there.  The sister kept choking up, "If ever we needed to be a family, it's now"  People were amening and crying.  The sister was visibly having a hard time speaking, "What I have to say is.... our niece, kiki has died"  At this, screams erupted. People jumped up wailing, saying "What!, Why are you saying this? How can you say this in front of Yvonne" Pandemonium, as people ran down the hall crying, shouting, moaning and angry.  Yvonne sat, tears streaming, looking weak and shocked.  The sister making the announcement said to me, "Yvonne raised Kiki, she was a 4th child to her.  Kiki was only 12, she had cerebral palsy from birth, and her death had been sudden."

What a way to make an announcement! You'd think there was a more subtle way to let someone know their child had died. After comforting my patient, I got up to leave... that meeting was defiantly over, with a big black exclamation point.   


Monday, November 5, 2007

Ignorance Bliss?

Something to ponder. 

As science advances, one of the things that will occur is the linking of cancers to choices. We know now all about the links of smoking, obesity, etc.  But, what if we're able to pinpoint all cancer to a specific behavior?
So what?

Well, think of this.  Is it comforting to be able to assume the cancer you're dying from is just happenstance? Perhaps it allows you to blame God? Or at least be able to blame circumstance. The responsibility is at least not yours to have to sit with, hour after hour, as your body withers. Will science take that away? We are searching for reasons, aren't we?  But what if all the reason's just point to ourselves?  We can't then be mad at God or even chuck it up to LIFE... it becomes our own grief at bad choices.

What I'm not sure of is if our new information and causations will be helpful or harmful. I see a lot of guilt with certain cancers, which seems to get in the way of the dying process.  At the same time, I see a lot of blaming God for things that don't make sense that also hinders the closure process.  

Be prepared: by the time you die, you may know exactly what food you ate too much of, or what behavior you did that will be the ultimate cause of your death.  It will be interesting to know if it changes anything.